About the role

ABOUT PROBABLY GENETIC Probably Genetic is changing the lives of patients living with severe, complex diseases. Our data platform is used by drug developers and patient advocacy groups to develop and launch treatments for these patients. Our technology discovers undiagnosed patients online, analyzes their disease state using machine learning and at-home testing, and enables compliant communication with patients. In doing so, we help patients access diagnoses, clinical trials, and treatments as early as possible. We are a tight-knit group of hard-working, ambitious problem solvers united by a mission greater than ourselves. We do well by doing right by patients. We are developing some of the most cutting-edge solutions in healthcare, and our roadmap is packed with innovations in bioinformatics, AI, and drug development. We have built a lean, all-star team to help us bring our vision to life, and we want you to be a part of it. Probably Genetic has raised multiple rounds of funding from Silicon Valley’s best investors, including Threshold, Khosla, and Y Combinator, and offer competitive salaries, comprehensive benefits, and meaningful early stage equity. ABOUT THE ROLE We are looking for a Head of Community Marketing to build and lead our community marketing strategy for the patients, families, and caregivers of the rare disease population we serve. You'll turn a scattered, often isolated population into an engaged community, and turn that community into a growth engine for Probably Genetic. WHAT YOU WILL DO - Define and own our community marketing strategy, spanning virtual (social, online groups, content, email) and in-person (events, conferences, meetups, fundraisers) channels - Develop original campaign concepts to activate and grow patient and caregiver communities - Build and own relationships with patient advocacy groups (PAGs) and foundations across hundreds of rare diseases, strengthening existing partnerships and cultivating new ones - Test and iterate across tactics, including referral and email outreach, PAG partnerships and sponsorships, events, participant compensation, and paid media - Track how community efforts influence key metrics, including patient acquisition and CAC, and adjust strategy accordingly - Build scalable, repeatable playbooks for community-driven growth - Represent Probably Genetic at conferences, fundraisers, and community events, with regular travel expected WHO YOU ARE We are looking for a few specific things that will help you succeed in this role: - 5-10 years of experience in community marketing or community-led growth at a consumer brand known for genuine community engagement (health/wellness, fitness, productivity, or lifestyle products with passionate user bases are a strong fit) - A track record of building or significantly growing a community with active participation, members creating content, referring others, and organizing around the brand themselves - Creative instincts for community activation, from concept to execution - Fluency in both virtual and in-person community building - Comfort using data to guide decisions and identify what's driving growth, engagement, and CAC - Genuine empathy for engaging a sensitive, high-stakes population; you never lose sight of the real people behind the community - Strong written and verbal communication; you can shape a brand's voice and adapt it to a high-trust context - Willingness to travel regularly for events and partner meetings Some things that are not required, but you will learn on the job: - Familiarity with the rare disease landscape or existing relationships within the rare disease community As with all new hires at Probably Genetic, you will also need to be: - A good person. We work with some of the most marginalized populations on the planet and empathy is key - Patient-focused and motivated to have a lasting, positive impact on humanity - Comfortable in a fast-paced, often ambig